Surprises and changes, curveballs and crises: as a caregiver you can count on them all.
Sometimes the surprises are pleasant. Sometimes the curveballs and changes lead to positive action or a necessary care transition. But if we knew when a crisis would happen, would we be any more prepared?
Several members of Caregivers Connect, a Facebook discussion group, said they have no plan B. Several said a nursing home or other family members would serve as their plan B. The truth is, many caregivers are unprepared for a crisis. And that’s not because they aren’t expecting one, or procrastinating, or careless about future plans. Many are simply too deep in the trenches of daily caregiving—the “tyranny of the urgent”—to consider a plan B.
What happens when the caregiver collapses in the living room, and the care receiver cannot dial 911? What about when a caregiver needs emergency surgery? Or when a home care worker doesn’t show up and you absolutely have to get to work?An endless range of challenging scenarios face caregiving families every day. It would be impossible to prepare for them all; some may never happen. Still, all caregivers should dedicate some thought, time, and resource allocation to “what if.”
5 Tips and Tools for Creating a Caregiver Plan B
Many assisted living communities offer short-term stays for a variety of situations. Some test the waters before making a long-term move. Some use it for respite. And in some cases, a caregiving crisis prompts the need for around-the-clock care in a community setting. Ask local caregivers and your family’s primary care provider for their recommendations and start researching local communities that offer these short-term stays. Submit paperwork for the one(s) you feel could best serve a relatives’ needs, should the need arise.
Caregiving “chore charts.”
You can create your own with Google or with pen and paper, but the online services provided by organizations like Lotsa Helping Hands or Caring Bridge make it easier to connect a number of people all over the country—even relatives overseas—and update them on a caree’s changing needs and health status, or your own needs as a caregiver. Too often, well-meaning people offer caregivers help. But without a specific task or role, the good intentions fall to the wayside—and the needs remain unmet.
Emergency care provider.
Let’s say you’ve arranged for as-needed short-term stays. But you, the caregiver, have a fall in the middle of the night. Your relative with dementia is prone to wander at all hours. You cannot transport him to the care community in your current state. Care gap! To fix this, talk to a trusted friend or neighbor. Find someone who could commit to being on call 24-7 should this kind of gap in coverage arise.
Medical alert device or other visible “ID” for the caregiver.
We usually think of getting an emergency call button for the care receiver, but caregivers should have one too. Consider this scenario: you’re at the grocery store, and while there, you feel faint. You pass out, and you need transportation via ambulance. Wear some kind of identification, like a call button, that says you are a primary caregiver. The team treating you will be better equipped to provide for your family member during the crisis. Consider GreatCall’s Lively Mobile medical alert device.
Emergency first aid and urgent care apps.
Download time- and life-saving apps like iTriage, Pocket First Aid, and CPR Hands-Only for those tense moments when your caree might need immediate medical attention.
You’ve created a will, but does your family know where to find it? Read this article to be better prepared for next steps at the end of life.